Born in Scotland Data Trust
Overview
Data Pioneers build an infrastructure for trustworthy data stewardship around a longitudinal birth cohort study.
About
Born in Scotland Data Trust will develop an infrastructure for trustworthy data stewardship around a pilot birth cohort study that ultimately seeks to tackle the economic and healthcare inequalities affecting communities in Scotland. Stewarding healthcare, administrative and social data collected from pregnant women and their children, this pilot project will explore how data trusts can give research participants, including young people, a voice in decisions about data use.
Aims & Objectives
We believe data trusts can help support crucial health data research into pregnancy and childhood development, while at the same time providing enhanced participation and more robust safeguards for data and data rights.
Jessica Bell, Born in Scotland Data Trust.
