Born in Scotland Data Trust will develop an infrastructure for trustworthy data stewardship around a pilot birth cohort study that ultimately seeks to tackle the economic and healthcare inequalities affecting communities in Scotland. Stewarding healthcare, administrative and social data collected from pregnant women and their children, this pilot project will explore how data trusts can give research participants, including young people, a voice in decisions about data use.

‘We believe data trusts can help support crucial health data research into pregnancy and childhood development, while at the same time providing enhanced participation and more robust safeguards for data and data rights.’ (Jessica Bell, Born in Scotland Data Trust).

The Born in Scotland Data Trust is led by Jessica Bell (University of Warwick), with Rebecca Reynolds (University of Edinburgh) and Ann Hagell (The Association for Young People’s Health)