Developing a Data Trusts Research Agenda

The Data Trusts Initiative

Developing a Data Trusts Research Agenda

The Data Trusts Initiative

, 2021.

Abstract

Despite much progress in establishing the case for data trusts as a necessary innovation in data stewardship, important questions remain about the function and form that such trusts should take when responding to real-world challenges. Addressing these questions requires further work to clarify how data trusts fit in the current data governance landscape, and to identify the operational strategies that can ensure their success.

To better understand how data trusts can be taken from theory to practice, the Data Trusts Initiative is funding seven research projects that each address a gap in current understandings. These projects ask:

What do recent use cases tell us about operational strategies for data trusts?
How can legal mechanisms associated with data trusts enhance participation in healthcare research?
How might data trusts operate in the urban context?
How can data trusts support civic engagement and environmental stewardship in local communities?
How can data trusts be created in civil law jurisdictions?
Does the General Data Protection Regulation (GDPR) allow individuals to mandate their data rights to a trust (or other data intermediary)?
What combination of technical and legal infrastructure can give individuals more control over data about them?

A workshop convened by the Data Trusts Initiative on 29 June 2021 brought together the leaders of these research projects, to explore current issues in their work. While each considers a different aspect of data trust theory or practice, across the projects the following areas of shared interest emerge:

Understanding the nature of the legal landscape - the rights that exist in different jurisdictions and the legal environment in which data trusts might operate - and the implications of this for how data trusts manage data and data rights.
Exploring the points of interaction between individuals and data trusts, identifying the interventions necessary to ensure data trusts are accessible to all and effective at representing their beneficiaries.
Characterising the tensions that will arise in data trust design and identifying pathways to negotiate these tensions.

Links

Cite this Paper

BibTeX


@Misc{publications/developing-a-data-trusts-research-agenda,
  title = 	 {Developing a Data Trusts Research Agenda},
  author = 	 {{The Data Trusts Initiative}},
  year = 	 {2021},
  number =       {Working Paper 3},
  pdf = 	 {https://datatrusts.uk/assets/pdfs/working-paper-3-developing-a-data-trusts-research-agenda.pdf},
  url = 	 {/publications/developing-a-data-trusts-research-agenda},
  abstract = 	 {Despite much progress in establishing the case for data trusts as a
necessary innovation in data stewardship, important questions remain
about the function and form that such trusts should take when
responding to real-world challenges. Addressing these questions
requires further work to clarify how data trusts fit in the current
data governance landscape, and to identify the operational
strategies that can ensure their success.

To better understand how data trusts can be taken from theory to
practice, the Data Trusts Initiative is funding seven research
projects that each address a gap in current understandings. These
projects ask:
- What do recent use cases tell us about operational strategies for
  data trusts?
- How can legal mechanisms associated with data trusts enhance
  participation in healthcare research?
- How might data trusts operate in the urban context?
- How can data trusts support civic engagement and environmental
  stewardship in local communities?
- How can data trusts be created in civil law jurisdictions?
- Does the General Data Protection Regulation (GDPR) allow
  individuals to mandate their data rights to a trust (or other data
  intermediary)?
- What combination of technical and legal infrastructure can give
  individuals more control over data about them?

A workshop convened by the Data Trusts Initiative on 29 June 2021
brought together the leaders of these research projects, to explore
current issues in their work. While each considers a different
aspect of data trust theory or practice, across the projects the
following areas of shared interest emerge:
- Understanding the nature of the legal landscape - the rights that
  exist in different jurisdictions and the legal environment in
  which data trusts might operate - and the implications of this for
  how data trusts manage data and data rights.
- Exploring the points of interaction between individuals and data
  trusts, identifying the interventions necessary to ensure data
  trusts are accessible to all and effective at representing their
  beneficiaries.
- Characterising the tensions that will arise in data trust design
  and identifying pathways to negotiate these tensions.
}
}

Endnote

%0 Generic
%T Developing a Data Trusts Research Agenda
%A The Data Trusts Initiative
%D 2021	
%F publications/developing-a-data-trusts-research-agenda
%U /publications/developing-a-data-trusts-research-agenda
%N Working Paper 3
%X Despite much progress in establishing the case for data trusts as a
necessary innovation in data stewardship, important questions remain
about the function and form that such trusts should take when
responding to real-world challenges. Addressing these questions
requires further work to clarify how data trusts fit in the current
data governance landscape, and to identify the operational
strategies that can ensure their success.

To better understand how data trusts can be taken from theory to
practice, the Data Trusts Initiative is funding seven research
projects that each address a gap in current understandings. These
projects ask:
- What do recent use cases tell us about operational strategies for
  data trusts?
- How can legal mechanisms associated with data trusts enhance
  participation in healthcare research?
- How might data trusts operate in the urban context?
- How can data trusts support civic engagement and environmental
  stewardship in local communities?
- How can data trusts be created in civil law jurisdictions?
- Does the General Data Protection Regulation (GDPR) allow
  individuals to mandate their data rights to a trust (or other data
  intermediary)?
- What combination of technical and legal infrastructure can give
  individuals more control over data about them?

A workshop convened by the Data Trusts Initiative on 29 June 2021
brought together the leaders of these research projects, to explore
current issues in their work. While each considers a different
aspect of data trust theory or practice, across the projects the
following areas of shared interest emerge:
- Understanding the nature of the legal landscape - the rights that
  exist in different jurisdictions and the legal environment in
  which data trusts might operate - and the implications of this for
  how data trusts manage data and data rights.
- Exploring the points of interaction between individuals and data
  trusts, identifying the interventions necessary to ensure data
  trusts are accessible to all and effective at representing their
  beneficiaries.
- Characterising the tensions that will arise in data trust design
  and identifying pathways to negotiate these tensions.

RIS


TY  - GEN
TI  - Developing a Data Trusts Research Agenda
AU  - The Data Trusts Initiative
DA  - 2021/06/29	
ID  - publications/developing-a-data-trusts-research-agenda
IS  - Working Paper 3
L1  - https://datatrusts.uk/assets/pdfs/working-paper-3-developing-a-data-trusts-research-agenda.pdf
UR  - /publications/developing-a-data-trusts-research-agenda
AB  - Despite much progress in establishing the case for data trusts as a
necessary innovation in data stewardship, important questions remain
about the function and form that such trusts should take when
responding to real-world challenges. Addressing these questions
requires further work to clarify how data trusts fit in the current
data governance landscape, and to identify the operational
strategies that can ensure their success.

To better understand how data trusts can be taken from theory to
practice, the Data Trusts Initiative is funding seven research
projects that each address a gap in current understandings. These
projects ask:
- What do recent use cases tell us about operational strategies for
  data trusts?
- How can legal mechanisms associated with data trusts enhance
  participation in healthcare research?
- How might data trusts operate in the urban context?
- How can data trusts support civic engagement and environmental
  stewardship in local communities?
- How can data trusts be created in civil law jurisdictions?
- Does the General Data Protection Regulation (GDPR) allow
  individuals to mandate their data rights to a trust (or other data
  intermediary)?
- What combination of technical and legal infrastructure can give
  individuals more control over data about them?

A workshop convened by the Data Trusts Initiative on 29 June 2021
brought together the leaders of these research projects, to explore
current issues in their work. While each considers a different
aspect of data trust theory or practice, across the projects the
following areas of shared interest emerge:
- Understanding the nature of the legal landscape - the rights that
  exist in different jurisdictions and the legal environment in
  which data trusts might operate - and the implications of this for
  how data trusts manage data and data rights.
- Exploring the points of interaction between individuals and data
  trusts, identifying the interventions necessary to ensure data
  trusts are accessible to all and effective at representing their
  beneficiaries.
- Characterising the tensions that will arise in data trust design
  and identifying pathways to negotiate these tensions.

ER  -

APA


The Data Trusts Initiative. (2021). Developing a Data Trusts Research Agenda. (Working Paper 3) Available from /publications/developing-a-data-trusts-research-agenda.